A new drug might be life-changing for my child. As a mom, weighing the pros and cons is agonizing

A dark-haired woman receives a kiss from a young child.

A new drug will soon be available to treat Rett syndrome. Amanda Marcotte's daughter is unable to tell whether she's OK with the potential side effects. So as a mother, Marcotte has to make the decision for her, and contemplates what are the right reasons.